The last time I posted was 3 days before my daughter, Elia was in a terrible freak accident at the local mall. An outboard boat motor on display fell on her, breaking her left femur & pelvis, leaving her in a body cast for the following 6 weeks. A month went by with our household picking up the pieces, trying to get back into a routine, trying to get back to our lives.
Then, the entire month of May, I was down for the count. At least 2 Doctor's visits a week, labs, tests, medications, everything. I couldn't move. It felt like I was dying. For 5 weeks, I laid on my living room couch, only getting up to go to appointments and to the bathroom. Lesions everywhere there could be, kidney's were on the verge of shutting down, fevers over 103 degrees that would spike without warning....And one day, it was just gone. As the weeks progressed, my outbreaks were minimal, occasional bursts of lesions or the random "flu-like" day, but with a new problem, severe insomnia. There were times I didn't sleep for 3 days. I tried, I just could not shut down. The end of June, my eyes started bothering me, and when my husband investigated, we found I have 4 lesions, 2 underneath each eyelid. Other than being painful and annoying, they only caused me one night of no vision.
Then, 2 weeks ago, it got bad. At first, I thought I was getting a cold after being up for 3 days. I mean, a few days without sleep and you're bound to develop some sort of virus. Then my throat started to get lesions on it. Only a few small ones that I could barely see at first, then all the way down, like a whiteish sheet blanketing my throat. Then, the right nostril started to hurt, and when I looked, I saw that it was one big lesion. Then my tongue, my uvula, the roof of my mouth....It was all getting covered. Then we noticed my ear, then the Fevers started, and my body started shutting down again. It is day 15, now. Medications are now clearing up my throat, and my ear, but the roof of my mouth is still a mess. And 3 days ago, genital lesions started rearing their ugly head. Then today, another eye lesion.
I have been battling with this disease since October of last year. I have tried a few different medication combinations, rest, exercise, everything "home" remedy and vitamin that is deemed safe for me to try. Whether it's a dual diagnosis, a misdiagnosis or just not the right meds, I don't care. I just want my body back. I have learned to deal with the physical pain. I can put on a happy face and make it through the day if I truly have to, but it's the emotional pain, the not knowing, the loss of capabilities, that's the worst. Simple tasks are daunting, and my life has become consumed with the disease. And now, It's time to fight back.
No comments:
Post a Comment