2 weekends ago, my husband and I made the 8 and a 1/2 hour trek to Long Island, New York to attend the Behcet's walk & talk. We both found the experience exhausting (haha) but incredibly informative. I learned a lot from the specialists information. Other attendants and I thought the discussion was a little too "lecture-esque", sine it felt more like a 3rd year college biology lecture. Power point presentation and all. But the information he did provide was very helpful. I learned that some of my symptoms that were before not associated with my Behcet's, in fact, should be. I learned that being of perisian descent, makes me genetically linked to Behcet's, where before, only people of middle eastern and/or greek descent were considered actual behcet's patients. I also was surprised to discover that I am one of the few (especially in my age group) to have almost all of the inclusive symptoms, yet am not receiving the adequate treatment.
After the "learning" we took some time to enjoy "Dylan's Candy Bar", a large candy store, that ended up only being about 2 miles away from the hotel. I <3 candy stores. :)
Today's update, my weight is back down to 128 lbs. I'm much happier and more comfortable with this number. My behcet's flares have been minimal, with only a throat lesion rearing it's ugly head. I honestly don't think it ever goes away, but merely becomes aggitated but certain foods, lack of sleep, stress, etc....But it's manageable.
Even with the new arrival of some unanticipated stress in my life, I seem to have my disease under control. Thank goodness. Update again soon.
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