Behçet's disease is a multi systemic autoimmune disease.
In an autoimmune disease, the immune system attacks and harms the bodies' own tissues.
The exact cause of Behçet's disease is unknown.
Behçet's disease affects each person differently.


And yes, the url of my blog is misspelled. It should be 'morethanadiaGnosis', but: Genius, no. Funny, yes.

Sunday, January 29, 2012

Throat is becoming an issue....bad....

As you can see from the photos below, my throat growth/lesion started off as a yellowish/white "film" covering the entire back of my throat (the oropharynx), but now, 8 months later, it has turned into a brown hard mass covering the upper part of the oropharynx/sinus cavity. I can not even describe the pain it causes. My right ear feels like I have shards of glass in it, my face goes numb, my tonsils and roof of my mouth swell, my ribs hurt from coughing, and sometimes the pain is so bad, I pass out.
Every doctor I've seen, has treated me for numerous bacterial infections, viral infections and fungal infections, with no relief. They then diagnose me with an "infected behcet's lesion", give me a prescription for an antibiotic, diflucan and prednisone and send me on my way. But every single time, nothing helps. And even if I go back to the same doctor and show them that it's getting worse, they tell me they don't know what to tell me and send me home.
My main concern right now, is the fact that the growth on my cervix, according to my gyno, resembles the growth on my throat. And the growth on my cervix is cancerous. After doing a lot of research, I've found that it is very common to develop cancer in both places, because they are basically the same type of area. Soft tissue and mucous membrane. And I worry that it's been 8 months, and now that all the lymph nodes in my neck are swollen, I can't sleep longer than 2 hours at a time (due to pain), and I am passing out from pain, and it may be too late. All this fighting I've done for my health, with no help from the medical community, and what if it's too late? I've been charting my weight, and it's decreasing rapidly. Yawning makes my throat bleed, and talking can be excruciating.
So what do I do now? Continue going to these local doctors who don't know how to help me, and don't seem to give a damn, or just curl up in a ball and give up? I go thru a bottle of tylenol or motrin in 3 days, and the pain isn't even touched....But if I ask for anything for pain, I'm drug seeking, even with the proof of a huge mass basically consuming my throat.


I just need some answers. And I need someone who wants to help me. I can't keep walking in circles.

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