Who knows who will read this...but, I thought I'd put my thoughts on the net for the world to embrace.
I am 26 years old. A wife, A mother, A daughter. A friend. And I am struggling with some kind of autoimmune, multi systemic, possibly, connective tissue disorder.
I have been dealing with severe pain, mostly in my knees and hips. Oral & genital lesions. Eye pain/blurred vision. Migraines. Sleeplessness & fatigue. Chronic swollen lymph nodes and bruising. As well as extreme weight fluctuations over the last 3.5 years.
I have had multiple labs tests, x-rays, CT scans, EKG's, MRI's and soon, a colonoscopy & upper endoscopy. Yipee Skippee.
So far, we have come to the conclusion of 'Behcet's disease.' But recent lab results, may change that to Lupus. I wont know until all of my testing is complete.
This blog is meant to inform people. To show people what it is like to live day to day in pain and not know what the hell is going on with your body.
I have spent the last 3.5 years being called a hypochondriac . Even with abnormal labs, a lymph node biopsy showing inflammation and many more clinical findings. I miss on average a day of work per week, which is putting a damper on my employ-ability.
I know there are thousands of people out there, just like me. Living every day wondering if it will be better or worse than the day before. Worried about what other people think, if they believe you are as sick as you feel. Researching the internet day after day trying to find answers.
I will not post every day. But, when I am having a profound moment, or some new revelation happens, I plan to let who ever cares, know. I am hoping with my oddly adorable sense of humor and the support of my family, I can get people interested in my life.
Who knows, maybe this will start a whole new movement of people who have unknown disorders.
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