Behçet's disease is a multi systemic autoimmune disease.
In an autoimmune disease, the immune system attacks and harms the bodies' own tissues.
The exact cause of Behçet's disease is unknown.
Behçet's disease affects each person differently.


And yes, the url of my blog is misspelled. It should be 'morethanadiaGnosis', but: Genius, no. Funny, yes.

Monday, December 12, 2011

Some new revelations......

Last monday, my husband and I had thought we had made some progress. My day started with a trip to the OB to have my IUD removed, thinking that could be the problem with my vaginal issues. After the removal, and some testing, we left to spend the day at the local hospital to investigate a lesion/ulcer that has been growing in/on my naso-pharynx since June. After discovering that I no longer have state funded insurance, I was given some rx's and sent on my way.
We did receive a call the following day explaining that because of the growth in my mouth, I had basically contracted every bacteria and virus possible. A typical person ingests millions of germs every day, with little to no cause for concern. But because, I had a nice warm place for them to settle and mature, I was literally re-introducing every germ into my bloodstream every time I swallowed. Numerous medications and vitamins/supplements later, we have seen some progress. Although, I am now a carrier for multiple things that are actually very frightening.

I then decided it was time to change not only my medication and supplement intake, but my diet as well. Our home is now mainly filled with vegan, gluten free, lactose free, sugar free, healthy foods. Lots of fresh produce, my new "wonder tea" that I created, numerous herbs and spices....And we are all seeing a difference. If we can't pronounce something on a label, we wont eat it. Obviously, everyone has a vice, mine being donuts and bacon cheeseburgers, but we are finding ways to incorporate without over doing it. :)
So after all of these changes, I thought there may be a light at the end of the tunnel. I'm feeling very well, sleeping thru the night in the first time in 7 weeks, my skin is bright, my disposition is positive, everything was just, well, perfect. Then today, I get a phone call from the OB I had seen last week. After reviewing my test results (she had noticed some "odd" things while doing my exam) and then comparing my lab tests with the ones done at the hospital the same day, the light slipped away a bit.
Not only do I have all of these bacteria, virus's, germs, etc in my throat/mouth/nose, but also in my cervix and uterus. Presumably, in my urinary/renal system as well, since my clinical history suggests it. Long story short, at least 3 of the virus's found in both locations (and we will find out if they are in my renal system in January), are very dangerous. I also tested positive as a diphtheria carrier, which I thought was an eradicated disease?! We don't have any concrete answers yet, once I meet with the urologist in January, my new PCP next week, and have a procedure done with the OB in February, than I will finally have some answers. Since 3 of the virus's found are "cancer causing", I'll have to endure a slew of tests. Which makes me wonder if back almost 4 years ago now, when they removed some of my lymph chain in my groin, and found "questionable cells" among them, if all along, I was developing what could end up being cancer. Nasopharyngeal, Cervical, Uterine and possibly even Renal. I'm 27 years old. I've been fighting, advocating, researching, doing everything I could to make sure I would never get to this point, and here it is.
So for now, I am continuing with my healthy life style choices, my supplements, medications and my positive attitude. Otherwise, I'd lose my mind. By February 14th, Valentines Day, I should know my future a little bit better. If not, my lawyer is going to have a field day! But even if it comes down to the big "C" word, I'm tough enough, spunky enough and determined enough to fight as hard as it takes.

No comments:

Post a Comment